Shift is here to build urgently necessary, real-world solutions for patient-directed sharing of health information.
Our work aims to advance the development and adoption of granular data segmentation standards,
terminology value sets, and implementation guidance across the health data ecosystem.
Shift’s use cases are grounded in real patient experiences and clinical complexity, not abstract policy.
Each scenario reflects sensitive, high-impact situations where today’s “all-or-none” data sharing model fails patients and providers. These use cases guide our sandbox demonstrations, implementation guidance, and policy recommendations to ensure that our solutions are relevant, practical, and ready for the front lines of care.
This foundational paper outlines Shift’s vision for equitable interoperability—and why the time to act is now.
It explores the risks of today’s all-or-nothing data sharing model, the urgency of patient-centered consent, and Shift’s collaborative roadmap for real-world solutions. A must-read for policymakers, technologists, and advocates working at the intersection of privacy, trust, and health IT.
A blueprint for the future of privacy-first, trusted, health data exchange.
The vision for the SHIFT Sandbox is a persistent environment where we demonstrate how standards based granular data segmentation and consent can work in practice. It’s built on validated use cases, used to to refine standards, and help stakeholders move from theory to practice to implementation at scale.
Clinicians, technologists, patients, and advocates working to ensure that health data policy works in the real world.
In today’s fragmented policy landscape, health data privacy rules vary widely across federal, state, and even institutional lines. Implementers need clear, practical, and standards-aligned guidance on how to share health data safely and appropriately in the face of complex, overlapping privacy rules. Shift advocates for equitable, patient-directed health data sharing that is both technically feasible and grounded in trust, ethics, and real-world policy.
You can also read our slides from the deep dive video here.
(10/2024)
TreeTop Episode 13: Dr Steven Lane Interviews Dr. Hannah Galvin (06/2023)