Links & Resources

HL7 FHIR, a standard for exchanging healthcare information electronically. Many Electronic Health Records (EHR's) already use FHIR based standards to share information from one organization to another.

Data Segmentation for Privacy FHIR (DS4P), a standard for applying security labels in FHIR. Currently DS4P is the only standard supported by the US government for segmented sharing of health data.

Data Segmentation for Privacy CDA (DS4P), a standard for applying security labels through CDA. Currently DS4P is the only standard supported by the US government for segmented sharing of health data.

Privacy Consent on FHIR (PCF), a FHIR standard developed by Integrating the Healthcare Enterprise (IHE), specifically focusing on Privacy and Consent.

Confidentiality, Privacy & Security Toolkits provided by the Stewards of Change Institute. 

Success Stories from the Gravity Project.

Project Unify, a workgroup for consent management standards for Social Determinants of Health (SDoH). Project Unify is hosted through the Stewards of Change Institute, a non-profit think tank. 

The Gravity Project, a public collaborative working to define what SDoH information is, and how it should be shared within the healthcare system and beyond.

User Managed Access (UMA), an OAuth-based protocol set that helps individuals manage third-party access to their data, content, and service resources across different identity and resource ecosystems.

ONC LEAP Computable Consent Project, a project focused on standardization and implementation of a scalable patient consent service based on the HL7® FHIR® Consent resource. 

Value Set Authority Center (VSAC). Provided by the National Library of Medicine (NLM), VSAC is a repository and authoring tool for public value sets created by external programs.